Friday, July 14, 2006

The rest of my week was okay. I was half an hour late for work because we got lost in The Woodlands due to my bad directions. Thankfully, I still did half an hour of work. That's okay with me. Today has gone well. Cynthia and I got to talk about different ways to manage pain. Most counselors are not trained in disability issues, so this may not be a good fit in the long run. The last therapist I saw for two years tried to put me in the mold of an able bodied person with regard to living quarters, a job from 8-5, etc. She said all I would need is PT and exercise to limber up my muscles. However, she failed to recognize poor vision, pain management and control, and success on the job. So, due to this type of runaround, I may not go back down that road. It appears that it's not appropriate due to lack of education from her end. Besides, if you are disabled and in need of mental help, this is what they should give you...not the whole picture of what they think life should be from an able bodied standpoint.

It's just really hard for me to see which way to go after having gone through therapy many times before. The training and education just isn't there.

Dinner was good tonight. Shrimp, chicken, and veggie pasta. Followed by ice cream with fudge and caramel topping. Yum. Now I'm just getting settled in for the night. My pain has still lingered, but chores and doing things around the house have helped me be productive all the way. This is great. And as far as the therapist labels go, those are her issues. Not mine. I can honestly say that after seeing RENT numerous times, and the documentary on DVD, I can say that turning 30 sucks, and therapists suck. I have always hated ignorant people. Especially the professionals who think they know CP back to front, when in reality, they don't know a thing. They just act big and proud for their own swelled headed-ness. My mistake is walking in, and thinking I'm going to get the best treatment possible. Not so much. Education is needed. Doctors, psychologists, and therapists all need to be a team if they expect to really know how to treat CP. I've just ended up with the short end of the stick in my life so far. I have yet to be impressed by anyone in these areas of work. No one has done it yet.

Unless you count Dr. Wang. He's got the knowledge and the know how to respect family and do a good job at his craft. Most neurologists should take after him. Even my family practice doctor is still new at his craft, and has to do referrals. Bad sign. But if all three doctors can team up, I'll be in good shape medically. The pain specialist is doctor number 3. Here we go.

This is just a rundown of what I've had to deal with. Stats may say we're at high risk for depression. But that doesn't always play out with every case. At least I can read between the lines and really look at the reality of my situation. My 3 doctors are all I need right now. Adding a counselor or psychologist in would just complicate things, especially since the mainstream seems to be their mindset and training. Not in my book. The mainstream, like all mental health workers, sucks. We have disabilities, and need accomodations, not the mainstream.

Okay, enough rambling. I've got to go take care of some things before bed. Hasta luego, y ciao!

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